Tag Archives: coping

Be Our Guest: Nobody Said It Was Easy

May is national neurofibromatosis (NF) month! What’s that? You ask.  Well, that is why it is really important we take note and learn about this devastating disease.  A friend of mine, who I have know since she was in diapers, … Continue reading

Posted in anger, anxiety, Chronic Illness, conditions and diseases, grief, helping, humor, neurofibromatosis (NF), understanding | Tagged , , , , | 2 Comments

Why People with Chronic Illness Rarely Take Your Advice Well

People with a chronic illness live with their illness like Olympic athletes live and breathe their events day in and day out.  Except for one major detail, we didn’t choose to be chronically ill and we don’t love it.  We … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, depression, disability, fibromyalgia, friends, friendship, health, helping, hope, lupus, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, struggles, suicide, understanding | Tagged , , , , , , , , , , , , , , , , | 14 Comments

Facing Death

I’m not the only one in my world dealing with severe illness.  Sometimes I’m the one on the outside, powerless to help, wishing for a cure, dreaming of an imaginary world in which someone I loved wasn’t suffering.  It’s heartbreaking.  … Continue reading

Posted in anxiety, cancer, caring, Chronic Illness, compassion, conditions and diseases, death, grief, health, humor, struggles, understanding | Tagged , , , , , | Leave a comment

Taking Back My Life, One Country at a Time

I did it!  I went to Scotland for two weeks, not only survived, but also had a good time.  Of course, it was different from traveling when I was healthy, but it was a giant triumph.  Traveling is one of … Continue reading

Posted in humor, Scotland | Tagged , , , , , , , , , , , , | 3 Comments

Why Should I be Grateful?

Most days this is an impossible question to answer.  Not just for someone like me.  We all have our struggles and it’s hard to find that proverbial silver lining.  Especially when we are bombarded from every angle by news of … Continue reading

Posted in anger, anxiety, caring, cats, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, disability, family, fibromyalgia, friends, friendship, health, helping, hope, humor, invisible illness, love, lupus, Medicine, struggles | Tagged , , | 6 Comments

Control over our lives? We have no control. Or do we?

It’s been a really rough couple of months and while I have sure spent my fair share of time wallowing, I’ve also managed a thought or two.  I’ve come to the conclusion that when you are chronically ill or in … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, disability, fear, fibromyalgia, hope, lupus, Mystery Illness, pain management, rheumatoid arthitis, suicide | Tagged , , , , , | 12 Comments

The Oxygen Mask Rule

You know that really long boring safety speech we all pretty much ignore before we take off for any flight?  Remember how they always say to always put your oxygen mask on first before helping anyone else? The reason is … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, family, fibromyalgia, friends, friendship, health, helping, invisible illness | Tagged , , , , , , | 3 Comments

No One Talks About the Fear

The other day was a stunningly beautiful sunny day with a light breeze.  Exactly what you imagine when you think of the perfect day to be outside doing, well, anything.  I, however, sat looking out the window from my physical … Continue reading

Posted in anxiety, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, fibromyalgia, health, helping | Tagged , , , , , , | 83 Comments

She replied, “I wish I had a stroke as an excuse for my short-term memory issues!”

I Had a Stroke at 33 This is a long story, but a good one.  Although she experienced very little pain you can see the same stories circling her life after the stroke.  You can see how she was treated … Continue reading

Posted in Chronic Illness, conditions and diseases, coping, understanding | Tagged , , , | 2 Comments

Darkest Days 3

If you are just joining, this will make a lot more sense if you go back and read 1 and 2. A couple years later I wanted to peacefully close the door on my ex.  I still had love in … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, fibromyalgia, friendship, health, helping, invisible illness, pain management, understanding | Tagged , , , , , , , | 2 Comments