Category Archives: Chronic Pain

Why People with Chronic Illness Rarely Take Your Advice Well

People with a chronic illness live with their illness like Olympic athletes live and breathe their events day in and day out.  Except for one major detail, we didn’t choose to be chronically ill and we don’t love it.  We … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, depression, disability, fibromyalgia, friends, friendship, health, helping, hope, lupus, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, struggles, suicide, understanding | Tagged , , , , , , , , , , , , , , , , | 14 Comments

You Are Not Alone

When you realize that the life you once knew is lost, all your hopes and dreams are shattered and everything you worked so hard to achieve has slipped through your fingers-You are not alone. When you want to give up … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, confused, coping, depression, disability, fear, fibromyalgia, friends, friendship, health, humor, pain management, rheumatoid arthitis, struggles, suicide | 16 Comments

Let’s Talk About Friendship

When I first got sick I received a hard and fast lesson on the people in my life who were actually fair weather friends.  My vast and varied social life quickly dwindled down to a small handful of people that … Continue reading

Posted in chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, family, friends, friendship, health, helping, invisible illness, Medicine, pain management, struggles, understanding | 6 Comments

I Visited Normality for a Few Days, What I Learned is Shockcing

Suddenly, for no reason at all my body decided to act normal for a brief moment in time and the experience was eye-opening.  Unfortunately, my foray into the normal world wasn’t a walk on the pain-free side.  Instead, I experienced … Continue reading

Posted in anxiety, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, health, invisible illness, pain management, struggles | 2 Comments

Why Should I be Grateful?

Most days this is an impossible question to answer.  Not just for someone like me.  We all have our struggles and it’s hard to find that proverbial silver lining.  Especially when we are bombarded from every angle by news of … Continue reading

Posted in anger, anxiety, caring, cats, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, disability, family, fibromyalgia, friends, friendship, health, helping, hope, humor, invisible illness, love, lupus, Medicine, struggles | Tagged , , | 6 Comments

Control over our lives? We have no control. Or do we?

It’s been a really rough couple of months and while I have sure spent my fair share of time wallowing, I’ve also managed a thought or two.  I’ve come to the conclusion that when you are chronically ill or in … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, disability, fear, fibromyalgia, hope, lupus, Mystery Illness, pain management, rheumatoid arthitis, suicide | Tagged , , , , , | 12 Comments

I Just Had My Disability Hearing and I’m Sending Them All My Future Therapy Bills

When I was healthy people who were supposed to help me when I was sick pretty much did.  If I came down with something I just called the doctor, got an appointment, they asked questions, checked me out, probably prescribed … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, depression, disability, disability hearing, Doctors, fear, fibromyalgia, struggles | Tagged , , , , , | 11 Comments

The Oxygen Mask Rule

You know that really long boring safety speech we all pretty much ignore before we take off for any flight?  Remember how they always say to always put your oxygen mask on first before helping anyone else? The reason is … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, family, fibromyalgia, friends, friendship, health, helping, invisible illness | Tagged , , , , , , | 3 Comments

What does it mean to live?

Now I’m not asking what it means to be alive.  Then we would get into arguments about plants, fetuses, the whole Terry Schiavo thing, and even the argument about the potential for life being enough.  This discussion is going to … Continue reading

Posted in anger, anxiety, chronic fatigue syndrome, Chronic Illness, Chronic Pain, coping, depression, fear, fibromyalgia | Tagged , , , | 37 Comments

No One Talks About the Fear

The other day was a stunningly beautiful sunny day with a light breeze.  Exactly what you imagine when you think of the perfect day to be outside doing, well, anything.  I, however, sat looking out the window from my physical … Continue reading

Posted in anxiety, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, fibromyalgia, health, helping | Tagged , , , , , , | 83 Comments