Tag Archives: caring

Why People with Chronic Illness Rarely Take Your Advice Well

People with a chronic illness live with their illness like Olympic athletes live and breathe their events day in and day out.  Except for one major detail, we didn’t choose to be chronically ill and we don’t love it.  We … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, depression, disability, fibromyalgia, friends, friendship, health, helping, hope, lupus, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, struggles, suicide, understanding | Tagged , , , , , , , , , , , , , , , , | 8 Comments

Taking Back My Life, One Country at a Time

I did it!  I went to Scotland for two weeks, not only survived, but also had a good time.  Of course, it was different from traveling when I was healthy, but it was a giant triumph.  Traveling is one of … Continue reading

Posted in humor, Scotland | Tagged , , , , , , , , , , , , | 3 Comments

I Just Had My Disability Hearing and I’m Sending Them All My Future Therapy Bills

When I was healthy people who were supposed to help me when I was sick pretty much did.  If I came down with something I just called the doctor, got an appointment, they asked questions, checked me out, probably prescribed … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, depression, disability, disability hearing, Doctors, fear, fibromyalgia, struggles | Tagged , , , , , | 11 Comments

No One Talks About the Fear

The other day was a stunningly beautiful sunny day with a light breeze.  Exactly what you imagine when you think of the perfect day to be outside doing, well, anything.  I, however, sat looking out the window from my physical … Continue reading

Posted in anxiety, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, fibromyalgia, health, helping | Tagged , , , , , , | 70 Comments

Darkest Days 3

If you are just joining, this will make a lot more sense if you go back and read 1 and 2. A couple years later I wanted to peacefully close the door on my ex.  I still had love in … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, fibromyalgia, friendship, health, helping, invisible illness, pain management, understanding | Tagged , , , , , , , | 2 Comments

Darkest Days 1

I’ve been in terrible pain for a few weeks now, in addition to all my usual pain.  I have a peripheral stimulator in my abdomen that usually controls nerve pain caused by a complication from a surgery to fix an inguinal hernia.  … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, fibromyalgia, health, invisible illness, pain management, understanding | Tagged , , , , | 14 Comments

23 Tip For Men on Supporting a Partner with Chronic Pain

I know I have been posting other people’s writing lately. Don’t worry, I haven’t given up writing. The truth is that right now my doctors are futzing with my anti seizure and pain meds and to function successfully both mentally … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, Doctors, family, fibromyalgia, friends, friendship, health, helping, ilness, invisible illness, language, language barrier, love, Medicine, Mystery Illness, pain management, practicing medicine, rheumatoid arthitis, understanding | Tagged , , , , , , , , , , , , | 10 Comments