Category Archives: Mystery Illness

Why People with Chronic Illness Rarely Take Your Advice Well

People with a chronic illness live with their illness like Olympic athletes live and breathe their events day in and day out.  Except for one major detail, we didn’t choose to be chronically ill and we don’t love it.  We … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, depression, disability, fibromyalgia, friends, friendship, health, helping, hope, lupus, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, struggles, suicide, understanding | Tagged , , , , , , , , , , , , , , , , | 8 Comments

Control over our lives? We have no control. Or do we?

It’s been a really rough couple of months and while I have sure spent my fair share of time wallowing, I’ve also managed a thought or two.  I’ve come to the conclusion that when you are chronically ill or in … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, disability, fear, fibromyalgia, hope, lupus, Mystery Illness, pain management, rheumatoid arthitis, suicide | Tagged , , , , , | 12 Comments

Lost in Grief

For the majority of people coping with chronic pain or illness it came on suddenly while we were innocently living normal lives.  Whether we were nine or fifty years old chronic pain brought about devastating changes in the life we … Continue reading

Posted in caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, coping, depression, fibromyalgia, health, invisible illness, Medicine, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, understanding | Tagged , , , , , , , , , | 14 Comments

23 Tip For Men on Supporting a Partner with Chronic Pain

I know I have been posting other people’s writing lately. Don’t worry, I haven’t given up writing. The truth is that right now my doctors are futzing with my anti seizure and pain meds and to function successfully both mentally … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, Doctors, family, fibromyalgia, friends, friendship, health, helping, ilness, invisible illness, language, language barrier, love, Medicine, Mystery Illness, pain management, practicing medicine, rheumatoid arthitis, understanding | Tagged , , , , , , , , , , , , | 10 Comments

How Chronic Pain and Illness Fan the Flames of Uncertainty

Turning Straw Into Gold Life through a Buddhist lens by Toni Bernhard, J.D. How Chronic Pain and Illness Fan the Flames of Uncertainty Six ways uncertainty is heightened for the chronically ill Published on April 1, 2014 by Toni Bernhard, J.D. in Turning … Continue reading

Posted in anxiety, caring, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, family, fibromyalgia, friendship, health, invisible illness, Mystery Illness | Leave a comment

Who Are You?

“Who are you?” asked the most likely stoned caterpillar of Alice in Wonderland.  She gave her name, but that wasn’t what he meant so he asked again.  Faced with the same question, talking caterpillar or not, we all have to … Continue reading

Posted in anxiety, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, Doctors, family, fibromyalgia, friends, friendship, health, helping, ilness, invisible illness, lost, love, lupus, Medicine, mystery diagnosis, Mystery Illness, pain management, practicing medicine, rheumatoid arthitis, understanding | Tagged , , , , , , , , , , , , , | 8 Comments

Suicide is Not About You

Warning: This is a candid piece about a difficult subject.  Please understand I am not advocating suicide nor is this a cry for help.  I’m encouraging understanding and compassion. The chronically ill suffer from severe depression, grief, loss, and a … Continue reading

Posted in chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, family, friends, friendship, health, helping, invisible illness, lupus, Medicine, mystery diagnosis, Mystery Illness, pain management, practicing medicine, suicide | Tagged , , , , , , , , , , , | 53 Comments