Tag Archives: health

Why People with Chronic Illness Rarely Take Your Advice Well

People with a chronic illness live with their illness like Olympic athletes live and breathe their events day in and day out.  Except for one major detail, we didn’t choose to be chronically ill and we don’t love it.  We … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, depression, disability, fibromyalgia, friends, friendship, health, helping, hope, lupus, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, struggles, suicide, understanding | Tagged , , , , , , , , , , , , , , , , | 9 Comments

Facing Death

I’m not the only one in my world dealing with severe illness.  Sometimes I’m the one on the outside, powerless to help, wishing for a cure, dreaming of an imaginary world in which someone I loved wasn’t suffering.  It’s heartbreaking.  … Continue reading

Posted in anxiety, cancer, caring, Chronic Illness, compassion, conditions and diseases, death, grief, health, humor, struggles, understanding | Tagged , , , , , | Leave a comment

Which Life is Better?

I just read an article about a boy who was diagnosed with juvenile idiopathic arthritis at 13 months.  Yes, months.  This is, of course, after they did test after test, hospital stays, and waited 6 months to see a rheumatologist. … Continue reading

Posted in chronic fatigue syndrome, Chronic Pain, conditions and diseases, coping, depression, Doctors, fibromyalgia, health | Tagged , , , | 11 Comments

23 Tip For Men on Supporting a Partner with Chronic Pain

I know I have been posting other people’s writing lately. Don’t worry, I haven’t given up writing. The truth is that right now my doctors are futzing with my anti seizure and pain meds and to function successfully both mentally … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, Doctors, family, fibromyalgia, friends, friendship, health, helping, ilness, invisible illness, language, language barrier, love, Medicine, Mystery Illness, pain management, practicing medicine, rheumatoid arthitis, understanding | Tagged , , , , , , , , , , , , | 10 Comments

Who Are You?

“Who are you?” asked the most likely stoned caterpillar of Alice in Wonderland.  She gave her name, but that wasn’t what he meant so he asked again.  Faced with the same question, talking caterpillar or not, we all have to … Continue reading

Posted in anxiety, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, Doctors, family, fibromyalgia, friends, friendship, health, helping, ilness, invisible illness, lost, love, lupus, Medicine, mystery diagnosis, Mystery Illness, pain management, practicing medicine, rheumatoid arthitis, understanding | Tagged , , , , , , , , , , , , , | 8 Comments

The Hidden Cost of Chronic Pain

Chronic pain turned my life upside down and inside out.  I had to give up my rock climbing, skydiving, and white water rafting.  I cried as I signed the paper work to sell my motorcycle.  Seeing anyone dancing is a … Continue reading

Posted in anxiety, caring, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, family, fibromyalgia, friends, friendship, health, helping, invisible illness, lost, love, Medicine, pain management, understanding | Tagged , , , , , , , , , | 32 Comments

It’s a lie! You aren’t Addicted.

The media, our friends, our family, even our doctors tell us that long term use of opioid pain killers causes addiction.  I bet there isn’t a single person with chronic pain who hasn’t been treated like some twitchy drug-seeking addict … Continue reading

Posted in Chronic Illness, Chronic Pain, conditions and diseases, coping, Doctors, family, fibromyalgia, health, helping, humor, ilness, invisible illness, language, Medicine, pain management, practicing medicine | Tagged , , , , , , , , , , | 11 Comments