Tag Archives: invisible illness

Be Our Guest: Nobody Said It Was Easy

May is national neurofibromatosis (NF) month! What’s that? You ask.  Well, that is why it is really important we take note and learn about this devastating disease.  A friend of mine, who I have know since she was in diapers, … Continue reading

Posted in anger, anxiety, Chronic Illness, conditions and diseases, grief, helping, humor, neurofibromatosis (NF), understanding | Tagged , , , , | Leave a comment

Why People with Chronic Illness Rarely Take Your Advice Well

People with a chronic illness live with their illness like Olympic athletes live and breathe their events day in and day out.  Except for one major detail, we didn’t choose to be chronically ill and we don’t love it.  We … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, depression, disability, fibromyalgia, friends, friendship, health, helping, hope, lupus, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, struggles, suicide, understanding | Tagged , , , , , , , , , , , , , , , , | 8 Comments

Taking Back My Life, One Country at a Time

I did it!  I went to Scotland for two weeks, not only survived, but also had a good time.  Of course, it was different from traveling when I was healthy, but it was a giant triumph.  Traveling is one of … Continue reading

Posted in humor, Scotland | Tagged , , , , , , , , , , , , | 3 Comments

Lost in Grief

For the majority of people coping with chronic pain or illness it came on suddenly while we were innocently living normal lives.  Whether we were nine or fifty years old chronic pain brought about devastating changes in the life we … Continue reading

Posted in caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, coping, depression, fibromyalgia, health, invisible illness, Medicine, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, understanding | Tagged , , , , , , , , , | 14 Comments

23 Tip For Men on Supporting a Partner with Chronic Pain

I know I have been posting other people’s writing lately. Don’t worry, I haven’t given up writing. The truth is that right now my doctors are futzing with my anti seizure and pain meds and to function successfully both mentally … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, Doctors, family, fibromyalgia, friends, friendship, health, helping, ilness, invisible illness, language, language barrier, love, Medicine, Mystery Illness, pain management, practicing medicine, rheumatoid arthitis, understanding | Tagged , , , , , , , , , , , , | 10 Comments

Who Are You?

“Who are you?” asked the most likely stoned caterpillar of Alice in Wonderland.  She gave her name, but that wasn’t what he meant so he asked again.  Faced with the same question, talking caterpillar or not, we all have to … Continue reading

Posted in anxiety, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, Doctors, family, fibromyalgia, friends, friendship, health, helping, ilness, invisible illness, lost, love, lupus, Medicine, mystery diagnosis, Mystery Illness, pain management, practicing medicine, rheumatoid arthitis, understanding | Tagged , , , , , , , , , , , , , | 8 Comments

The Hidden Cost of Chronic Pain

Chronic pain turned my life upside down and inside out.  I had to give up my rock climbing, skydiving, and white water rafting.  I cried as I signed the paper work to sell my motorcycle.  Seeing anyone dancing is a … Continue reading

Posted in anxiety, caring, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, family, fibromyalgia, friends, friendship, health, helping, invisible illness, lost, love, Medicine, pain management, understanding | Tagged , , , , , , , , , | 30 Comments