Category Archives: lupus

Why People with Chronic Illness Rarely Take Your Advice Well

People with a chronic illness live with their illness like Olympic athletes live and breathe their events day in and day out.  Except for one major detail, we didn’t choose to be chronically ill and we don’t love it.  We … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, depression, disability, fibromyalgia, friends, friendship, health, helping, hope, lupus, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, struggles, suicide, understanding | Tagged , , , , , , , , , , , , , , , , | 8 Comments

Why Should I be Grateful?

Most days this is an impossible question to answer.  Not just for someone like me.  We all have our struggles and it’s hard to find that proverbial silver lining.  Especially when we are bombarded from every angle by news of … Continue reading

Posted in anger, anxiety, caring, cats, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, disability, family, fibromyalgia, friends, friendship, health, helping, hope, humor, invisible illness, love, lupus, Medicine, struggles | Tagged , , | 6 Comments

Control over our lives? We have no control. Or do we?

It’s been a really rough couple of months and while I have sure spent my fair share of time wallowing, I’ve also managed a thought or two.  I’ve come to the conclusion that when you are chronically ill or in … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, disability, fear, fibromyalgia, hope, lupus, Mystery Illness, pain management, rheumatoid arthitis, suicide | Tagged , , , , , | 12 Comments

Who Are You?

“Who are you?” asked the most likely stoned caterpillar of Alice in Wonderland.  She gave her name, but that wasn’t what he meant so he asked again.  Faced with the same question, talking caterpillar or not, we all have to … Continue reading

Posted in anxiety, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, Doctors, family, fibromyalgia, friends, friendship, health, helping, ilness, invisible illness, lost, love, lupus, Medicine, mystery diagnosis, Mystery Illness, pain management, practicing medicine, rheumatoid arthitis, understanding | Tagged , , , , , , , , , , , , , | 8 Comments

Suicide is Not About You

Warning: This is a candid piece about a difficult subject.  Please understand I am not advocating suicide nor is this a cry for help.  I’m encouraging understanding and compassion. The chronically ill suffer from severe depression, grief, loss, and a … Continue reading

Posted in chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, family, friends, friendship, health, helping, invisible illness, lupus, Medicine, mystery diagnosis, Mystery Illness, pain management, practicing medicine, suicide | Tagged , , , , , , , , , , , | 53 Comments

My Shoes Fit Funny

My alarm goes off a half hour before I actually need to get out of bed.  That probably isn’t that strange, everybody likes the snooze button, but that isn’t the reason I set mine early.  I need the extra time … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, confused, coping, depression, Doctors, funny, health, helping, humor, invisible illness, lost, lupus, Medicine, pain management, practicing medicine, rheumatoid arthitis, Uncategorized, understanding | Tagged , , , , , , , , , , , , , , , | 9 Comments

“But You Look Great” The Challenges of Invisible Illness

An excellent definition of invisible illness comes from Social Work Today online, the November-December 2007 issue: “The term invisible illness refers to any medical condition that is not outwardly visible to others, even health care professionals. Invisible illnesses encompass a … Continue reading

Posted in anxiety, cancer, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, cultural differences, depression, Doctors, fibromyalgia, health, helping, invisible illness, lupus, Medicine, Mystery Illness, pain management, rheumatoid arthitis, Uncategorized, understanding | Tagged , , , , , , , | 12 Comments