Tag Archives: perspective

Why People with Chronic Illness Rarely Take Your Advice Well

People with a chronic illness live with their illness like Olympic athletes live and breathe their events day in and day out.  Except for one major detail, we didn’t choose to be chronically ill and we don’t love it.  We … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, depression, disability, fibromyalgia, friends, friendship, health, helping, hope, lupus, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, struggles, suicide, understanding | Tagged , , , , , , , , , , , , , , , , | 9 Comments

Taking Back My Life, One Country at a Time

I did it!  I went to Scotland for two weeks, not only survived, but also had a good time.  Of course, it was different from traveling when I was healthy, but it was a giant triumph.  Traveling is one of … Continue reading

Posted in humor, Scotland | Tagged , , , , , , , , , , , , | 3 Comments

23 Tip For Men on Supporting a Partner with Chronic Pain

I know I have been posting other people’s writing lately. Don’t worry, I haven’t given up writing. The truth is that right now my doctors are futzing with my anti seizure and pain meds and to function successfully both mentally … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, Doctors, family, fibromyalgia, friends, friendship, health, helping, ilness, invisible illness, language, language barrier, love, Medicine, Mystery Illness, pain management, practicing medicine, rheumatoid arthitis, understanding | Tagged , , , , , , , , , , , , | 10 Comments

Who Are You?

“Who are you?” asked the most likely stoned caterpillar of Alice in Wonderland.  She gave her name, but that wasn’t what he meant so he asked again.  Faced with the same question, talking caterpillar or not, we all have to … Continue reading

Posted in anxiety, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, Doctors, family, fibromyalgia, friends, friendship, health, helping, ilness, invisible illness, lost, love, lupus, Medicine, mystery diagnosis, Mystery Illness, pain management, practicing medicine, rheumatoid arthitis, understanding | Tagged , , , , , , , , , , , , , | 8 Comments

Ch ch ch Changes…

We have moved! Aha! You think, “I knew that was coming.” Yes, well, the migration patterns of the Shawn and Kristen this year have been quite erratic they seem to have abandoned their usual westward migration to California and gone … Continue reading

Posted in confused, coping, cultural differences, Culture, Drinking, funny, humor, Scotland, travel, travel abroad, tv, understanding, university | Tagged , , , , , , , , | Leave a comment

The Hidden Cost of Chronic Pain

Chronic pain turned my life upside down and inside out.  I had to give up my rock climbing, skydiving, and white water rafting.  I cried as I signed the paper work to sell my motorcycle.  Seeing anyone dancing is a … Continue reading

Posted in anxiety, caring, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, family, fibromyalgia, friends, friendship, health, helping, invisible illness, lost, love, Medicine, pain management, understanding | Tagged , , , , , , , , , | 32 Comments

Santa is Selling Kilts in Edinburgh!

Life Before Chronic Pain This weekend we made our very first trip to Edinburgh.  My mind was full of castles, cute shops, good food…all the things a tourist such as myself could possibly want.  Well it didn’t quite work out … Continue reading

Posted in compassion, confused, coping, Culture, Drinking, friends, friendship, funny, humor, Scotland, travel, travel abroad, understanding | Tagged , , , , , , , , | Leave a comment