Category Archives: caring

Why People with Chronic Illness Rarely Take Your Advice Well

People with a chronic illness live with their illness like Olympic athletes live and breathe their events day in and day out.  Except for one major detail, we didn’t choose to be chronically ill and we don’t love it.  We … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, depression, disability, fibromyalgia, friends, friendship, health, helping, hope, lupus, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, struggles, suicide, understanding | Tagged , , , , , , , , , , , , , , , , | 8 Comments

You Are Not Alone

When you realize that the life you once knew is lost, all your hopes and dreams are shattered and everything you worked so hard to achieve has slipped through your fingers-You are not alone. When you want to give up … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, confused, coping, depression, disability, fear, fibromyalgia, friends, friendship, health, humor, pain management, rheumatoid arthitis, struggles, suicide | 13 Comments

Facing Death

I’m not the only one in my world dealing with severe illness.  Sometimes I’m the one on the outside, powerless to help, wishing for a cure, dreaming of an imaginary world in which someone I loved wasn’t suffering.  It’s heartbreaking.  … Continue reading

Posted in anxiety, cancer, caring, Chronic Illness, compassion, conditions and diseases, death, grief, health, humor, struggles, understanding | Tagged , , , , , | Leave a comment

Why Should I be Grateful?

Most days this is an impossible question to answer.  Not just for someone like me.  We all have our struggles and it’s hard to find that proverbial silver lining.  Especially when we are bombarded from every angle by news of … Continue reading

Posted in anger, anxiety, caring, cats, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, disability, family, fibromyalgia, friends, friendship, health, helping, hope, humor, invisible illness, love, lupus, Medicine, struggles | Tagged , , | 6 Comments

Control over our lives? We have no control. Or do we?

It’s been a really rough couple of months and while I have sure spent my fair share of time wallowing, I’ve also managed a thought or two.  I’ve come to the conclusion that when you are chronically ill or in … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, disability, fear, fibromyalgia, hope, lupus, Mystery Illness, pain management, rheumatoid arthitis, suicide | Tagged , , , , , | 12 Comments

I Just Had My Disability Hearing and I’m Sending Them All My Future Therapy Bills

When I was healthy people who were supposed to help me when I was sick pretty much did.  If I came down with something I just called the doctor, got an appointment, they asked questions, checked me out, probably prescribed … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, depression, disability, disability hearing, Doctors, fear, fibromyalgia, struggles | Tagged , , , , , | 11 Comments

The Oxygen Mask Rule

You know that really long boring safety speech we all pretty much ignore before we take off for any flight?  Remember how they always say to always put your oxygen mask on first before helping anyone else? The reason is … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, family, fibromyalgia, friends, friendship, health, helping, invisible illness | Tagged , , , , , , | 3 Comments