Category Archives: helping

Be Our Guest: Nobody Said It Was Easy

May is national neurofibromatosis (NF) month! What’s that? You ask.  Well, that is why it is really important we take note and learn about this devastating disease.  A friend of mine, who I have know since she was in diapers, … Continue reading

Posted in anger, anxiety, Chronic Illness, conditions and diseases, grief, helping, humor, neurofibromatosis (NF), understanding | Tagged , , , , | 1 Comment

Why People with Chronic Illness Rarely Take Your Advice Well

People with a chronic illness live with their illness like Olympic athletes live and breathe their events day in and day out.  Except for one major detail, we didn’t choose to be chronically ill and we don’t love it.  We … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, depression, disability, fibromyalgia, friends, friendship, health, helping, hope, lupus, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, struggles, suicide, understanding | Tagged , , , , , , , , , , , , , , , , | 8 Comments

Let’s Talk About Friendship

When I first got sick I received a hard and fast lesson on the people in my life who were actually fair weather friends.  My vast and varied social life quickly dwindled down to a small handful of people that … Continue reading

Posted in chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, family, friends, friendship, health, helping, invisible illness, Medicine, pain management, struggles, understanding | 6 Comments

Why Should I be Grateful?

Most days this is an impossible question to answer.  Not just for someone like me.  We all have our struggles and it’s hard to find that proverbial silver lining.  Especially when we are bombarded from every angle by news of … Continue reading

Posted in anger, anxiety, caring, cats, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, disability, family, fibromyalgia, friends, friendship, health, helping, hope, humor, invisible illness, love, lupus, Medicine, struggles | Tagged , , | 6 Comments

The Oxygen Mask Rule

You know that really long boring safety speech we all pretty much ignore before we take off for any flight?  Remember how they always say to always put your oxygen mask on first before helping anyone else? The reason is … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, family, fibromyalgia, friends, friendship, health, helping, invisible illness | Tagged , , , , , , | 3 Comments

No One Talks About the Fear

The other day was a stunningly beautiful sunny day with a light breeze.  Exactly what you imagine when you think of the perfect day to be outside doing, well, anything.  I, however, sat looking out the window from my physical … Continue reading

Posted in anxiety, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, fibromyalgia, health, helping | Tagged , , , , , , | 70 Comments

Darkest Days 3

If you are just joining, this will make a lot more sense if you go back and read 1 and 2. A couple years later I wanted to peacefully close the door on my ex.  I still had love in … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, fibromyalgia, friendship, health, helping, invisible illness, pain management, understanding | Tagged , , , , , , , | 2 Comments