Category Archives: understanding

Be Our Guest: Nobody Said It Was Easy

May is national neurofibromatosis (NF) month! What’s that? You ask.  Well, that is why it is really important we take note and learn about this devastating disease.  A friend of mine, who I have know since she was in diapers, … Continue reading

Posted in anger, anxiety, Chronic Illness, conditions and diseases, grief, helping, humor, neurofibromatosis (NF), understanding | Tagged , , , , | Leave a comment

Why People with Chronic Illness Rarely Take Your Advice Well

People with a chronic illness live with their illness like Olympic athletes live and breathe their events day in and day out.  Except for one major detail, we didn’t choose to be chronically ill and we don’t love it.  We … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, depression, disability, fibromyalgia, friends, friendship, health, helping, hope, lupus, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, struggles, suicide, understanding | Tagged , , , , , , , , , , , , , , , , | 8 Comments

Facing Death

I’m not the only one in my world dealing with severe illness.  Sometimes I’m the one on the outside, powerless to help, wishing for a cure, dreaming of an imaginary world in which someone I loved wasn’t suffering.  It’s heartbreaking.  … Continue reading

Posted in anxiety, cancer, caring, Chronic Illness, compassion, conditions and diseases, death, grief, health, humor, struggles, understanding | Tagged , , , , , | Leave a comment

Let’s Talk About Friendship

When I first got sick I received a hard and fast lesson on the people in my life who were actually fair weather friends.  My vast and varied social life quickly dwindled down to a small handful of people that … Continue reading

Posted in chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, family, friends, friendship, health, helping, invisible illness, Medicine, pain management, struggles, understanding | 6 Comments

She replied, “I wish I had a stroke as an excuse for my short-term memory issues!”

I Had a Stroke at 33 This is a long story, but a good one.  Although she experienced very little pain you can see the same stories circling her life after the stroke.  You can see how she was treated … Continue reading

Posted in Chronic Illness, conditions and diseases, coping, understanding | Tagged , , , | 2 Comments

Darkest Days 3

If you are just joining, this will make a lot more sense if you go back and read 1 and 2. A couple years later I wanted to peacefully close the door on my ex.  I still had love in … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, fibromyalgia, friendship, health, helping, invisible illness, pain management, understanding | Tagged , , , , , , , | 2 Comments

Darkest Days 2

If you are just joining, please go back and read 1.  This will make more sense. Regardless of my many surgeries and complications life continued whether I did or not, as many of you know.  My partner at the time … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, confused, coping, depression, health, helping, invisible illness, pain management, suicide, understanding | Tagged , , , , , | 9 Comments