Author Archives: leitis23

About leitis23

I'm an adventure, living life to the fullest, and doing stupid things enthusiast, whose life took a serious left turn into chronic invisible illness. My saga of adventures in the world and in medicine never fail to keep life interesting.

Chronic Illness Changes Your Relationship with Death

When you’re chronically ill you have an intimate understanding of how fragile the human body is because you live with it every minute of every day.  It doesn’t matter if you’ve been sick for months or years, you’ve lost your … Continue reading

Posted in humor | 15 Comments

Be Our Guest: Nobody Said It Was Easy

May is national neurofibromatosis (NF) month! What’s that? You ask.  Well, that is why it is really important we take note and learn about this devastating disease.  A friend of mine, who I have know since she was in diapers, … Continue reading

Posted in anger, anxiety, Chronic Illness, conditions and diseases, grief, helping, humor, neurofibromatosis (NF), understanding | Tagged , , , , | 2 Comments

Why People with Chronic Illness Rarely Take Your Advice Well

People with a chronic illness live with their illness like Olympic athletes live and breathe their events day in and day out.  Except for one major detail, we didn’t choose to be chronically ill and we don’t love it.  We … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, depression, disability, fibromyalgia, friends, friendship, health, helping, hope, lupus, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, struggles, suicide, understanding | Tagged , , , , , , , , , , , , , , , , | 14 Comments

You Are Not Alone

When you realize that the life you once knew is lost, all your hopes and dreams are shattered and everything you worked so hard to achieve has slipped through your fingers-You are not alone. When you want to give up … Continue reading

Posted in anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, confused, coping, depression, disability, fear, fibromyalgia, friends, friendship, health, humor, pain management, rheumatoid arthitis, struggles, suicide | 16 Comments

Facing Death

I’m not the only one in my world dealing with severe illness.  Sometimes I’m the one on the outside, powerless to help, wishing for a cure, dreaming of an imaginary world in which someone I loved wasn’t suffering.  It’s heartbreaking.  … Continue reading

Posted in anxiety, cancer, caring, Chronic Illness, compassion, conditions and diseases, death, grief, health, humor, struggles, understanding | Tagged , , , , , | Leave a comment

Let’s Talk About Friendship

When I first got sick I received a hard and fast lesson on the people in my life who were actually fair weather friends.  My vast and varied social life quickly dwindled down to a small handful of people that … Continue reading

Posted in chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, depression, family, friends, friendship, health, helping, invisible illness, Medicine, pain management, struggles, understanding | 6 Comments

I Visited Normality for a Few Days, What I Learned is Shockcing

Suddenly, for no reason at all my body decided to act normal for a brief moment in time and the experience was eye-opening.  Unfortunately, my foray into the normal world wasn’t a walk on the pain-free side.  Instead, I experienced … Continue reading

Posted in anxiety, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, confused, coping, health, invisible illness, pain management, struggles | 2 Comments

Taking Back My Life, One Country at a Time

I did it!  I went to Scotland for two weeks, not only survived, but also had a good time.  Of course, it was different from traveling when I was healthy, but it was a giant triumph.  Traveling is one of … Continue reading

Posted in humor, Scotland | Tagged , , , , , , , , , , , , | 3 Comments

Why Should I be Grateful?

Most days this is an impossible question to answer.  Not just for someone like me.  We all have our struggles and it’s hard to find that proverbial silver lining.  Especially when we are bombarded from every angle by news of … Continue reading

Posted in anger, anxiety, caring, cats, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, disability, family, fibromyalgia, friends, friendship, health, helping, hope, humor, invisible illness, love, lupus, Medicine, struggles | Tagged , , | 6 Comments

Control over our lives? We have no control. Or do we?

It’s been a really rough couple of months and while I have sure spent my fair share of time wallowing, I’ve also managed a thought or two.  I’ve come to the conclusion that when you are chronically ill or in … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, disability, fear, fibromyalgia, hope, lupus, Mystery Illness, pain management, rheumatoid arthitis, suicide | Tagged , , , , , | 12 Comments