Category Archives: mystery diagnosis

Why People with Chronic Illness Rarely Take Your Advice Well

People with a chronic illness live with their illness like Olympic athletes live and breathe their events day in and day out.  Except for one major detail, we didn’t choose to be chronically ill and we don’t love it.  We … Continue reading

Posted in anger, anxiety, caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, depression, disability, fibromyalgia, friends, friendship, health, helping, hope, lupus, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, struggles, suicide, understanding | Tagged , , , , , , , , , , , , , , , , | 9 Comments

Lost in Grief

For the majority of people coping with chronic pain or illness it came on suddenly while we were innocently living normal lives.  Whether we were nine or fifty years old chronic pain brought about devastating changes in the life we … Continue reading

Posted in caring, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, coping, depression, fibromyalgia, health, invisible illness, Medicine, mystery diagnosis, Mystery Illness, pain management, rheumatoid arthitis, understanding | Tagged , , , , , , , , , | 14 Comments

Who Are You?

“Who are you?” asked the most likely stoned caterpillar of Alice in Wonderland.  She gave her name, but that wasn’t what he meant so he asked again.  Faced with the same question, talking caterpillar or not, we all have to … Continue reading

Posted in anxiety, chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, Doctors, family, fibromyalgia, friends, friendship, health, helping, ilness, invisible illness, lost, love, lupus, Medicine, mystery diagnosis, Mystery Illness, pain management, practicing medicine, rheumatoid arthitis, understanding | Tagged , , , , , , , , , , , , , | 8 Comments

Suicide is Not About You

Warning: This is a candid piece about a difficult subject.  Please understand I am not advocating suicide nor is this a cry for help.  I’m encouraging understanding and compassion. The chronically ill suffer from severe depression, grief, loss, and a … Continue reading

Posted in chronic fatigue syndrome, Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, depression, family, friends, friendship, health, helping, invisible illness, lupus, Medicine, mystery diagnosis, Mystery Illness, pain management, practicing medicine, suicide | Tagged , , , , , , , , , , , | 53 Comments

Where is My Diagnosis?!?

Sometimes I wish I had cancer because even if you look “healthy” people understand that your body is quite ill.  There is an understanding in society regarding cancer and it garners much more understanding and compassion.  In reality, I’m sure … Continue reading

Posted in anxiety, cancer, Chronic Illness, Chronic Pain, conditions and diseases, coping, cultural differences, depression, Doctors, health, helping, ilness, invisible illness, Medicine, mystery diagnosis, Mystery Illness, pain management, practicing medicine, understanding | Tagged , , , , , , , , , , , , , | 14 Comments

You Keep Using That Word. I Do Not Think it Means What You Think it Means

Chronic pain and illness sufferers live in a different world from those who are healthy.  As with anything in life, you really don’t know what you have until it is gone.  In the case of lost health, the change is … Continue reading

Posted in Chronic Illness, Chronic Pain, compassion, conditions and diseases, coping, cultural differences, Doctors, funny, health, humor, ilness, invisible illness, Medicine, mystery diagnosis, Mystery Illness, pain management, practicing medicine, Uncategorized, understanding | Tagged , , , | 2 Comments